Mastocytosis Alliance

A portal to the Mast Cell Web.

A collection of resources for those searching for answers about Mast Cell Diseases.

Learn about our goals.

The author was diagnosed with Smoldering Systemic Mastocytosis in 2013. He lived in West Texas but saw a doctor in Austin who told him he would never meet another patient or see a doctor who knew of the condition. He could find two websites online and one Facebook group regarding the condition. We’ve come far in the decade since and now we need a plan to work together and ensure new patients have easy access to all information online.

Coming Soon

What information do we collect?

The amount of mast cell knowledge online is exploding in many languages with research being conducted across the globe. Take a look at what we are prioritizing, and what we plan to catalog in the future.

Coming Soon

Learn about the author and his experience with the condition famous for “The sickest healthy-looking people alive.”

There is something special about being able to follow in someone else’s footsteps. To know you aren’t the first and you’re able to take advantage of the successes, and failures, of those who went before you.

Coming Soon

Read our latest blog post:

As a reminder, I have two blogs here. This one for dry web updates, and another as my personal blog with emotions. This blog serves as a changelog.

Today I’ve made the following changes:

  • I’ve overhauled the website to a dark theme. This is much easier on my eyes, and I suspect the eyes of most patients.
  • I’ve fixed the issue of mobile versions of the website not showing any updates. The website is now fully mobile first and each update applies to all views.
  • The website currently supports: Smart Phones, Tablets, HD monitors, and 4k Monitors. The 4K version will be served to TVs and other large format screens.
  • I’ve finished a style guide.
  • I’ve updated the hero imagine from an extremely bright white image to a basic black image.
  • Created and finished a page titled “Disclaimers and Privacy Policy” to ensure all essential information is on one page. I detailed this with potential plans for affiliate links and some revenue generation to allow for the website to pay for itself, and if things go well perhaps a small bit of profit.
  • Added a small medical disclaimer on the footer of every page.

I am still struggling with:

  • Putting together blocks into patterns into template parts into whatever else is needed to create dynamic pages that update automatically with data stored with the PODS plugin. I am attempting to complete the website without paying for any plugins or extras.
  • Creating decent graphics. This will take some time to learn, and I plan to ask friends who do this for a living to assist with a few graphics to start with.

Thank you all for your support as I learn how to complete this website. It will continue to take time, but I am excited to watch it grow.

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NeuroDivergentAtla

Atla is a 35-year-old male living in New York City, USA. He was diagnosed with Smoldering Systemic Mastocytosis in 2013 after a protracted search for a diagnosis to explain a plethora of lifelong disabling symptoms that prevented him from living a full life. He has spent the years since diagnosis learning everything he can about the condition and helping other patients to live better lives. His diagnosis “unfortunate collection” includes: Smoldering Systemic Mastocytosis Kounis Syndrome Hyperadrenergic Postural Orthostatic Tachycardia Syndrome (POTS) Autism (Asperger’s Syndrome) ADHD (Moderate Symptoms

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